TABLE 1

Patient Clinical Characteristics

Patient no.Age (y), sexGermline mutationAge at initial diagnosisStatus at the time of 18F-FLT and 18F-FDG PETSize of largest lesion at time of 18F-FLT/18F-FDGDopamine secretionReason for evaluation at time of 18F-FLT and 18F-FDG PETPrevious systemic treatments (delay between end of last treatment and PET scan)2-y follow-up (progression or death from PGL)
143, MSporadic43Primary3.8 cmNegativeSuspected primaryNoneNo
243, MSDHD43Primary4.8 cmNegativeSuspected primaryNoneNo
343, MSDHD41Primary4.7 cmNegativeRestagingNoneNo
448, FMEN235Metastatic12 cmNegativeRestaging131I-metaiodobenzylguanidine (>2 y)No
547, MSporadic30MetastaticUnknownNegativeSuspected recurrenceNoneNo
670, MSporadic67Metastatic24 cmNegativeSuspected recurrenceNoneNo
750, FSporadic43Metastatic8 cmNegativeRestaging131I-metaiodobenzylguanidine (8 mo), sandostatin therapy (on)No
830, MSDHB30Primary2.5 cmNegativeInitial stagingNoneNo
927, MSDHB27Primary3 cmNegativeInitial stagingNoneNo
1035, MSDHB19Metastatic8 cmPositiveRestagingNoneYes
1135, MSDHB25Metastatic7 cmPositiveRestagingCVD (>2 y), 131I-metaiodobenzylguanidine (4 mo)Yes
1247, MSDHB41Metastatic3 cmNegativeRestagingCVD (2 mo)Yes
  • CVD = cyclophosphamide, vincristine, and dacarbazine.